Wednesday, January 25, 2017

Hayden is Home!



Home Sweet Home    

I can do all things through Christ who strengthens me.

-Philippians 4:13



On Monday we finally got to bring our precious Hayden home!! Our long days and nights in the hospital have finally come to an end and we are so grateful to be back at home away from all of the monitors, tests, and long 12 hour days of consults and checks.  We are thankful to all of the nurses, doctors and staff that helped Hayden continue to grow, get stronger everyday, and defy the odds stacked against her. During her stay at Levine Children's Hospital we were privileged to be able to get to know those that took care of her and some have become family.  They watched over Hayden at night when Mom and Dad were too tired to stay, they taught us that eventhough some of her medical care will be difficult that we can power through it, and even joked  we should be put on the payroll because we were always there. They all said Hayden was the most popular baby at the hospital because everyone knew her story, and wanted to meet her because they knew how special she truly is.
It has been exhausting yet all the while rewarding journey so far being able to experience a true miracle.   We are happy to have her home but look forward to getting settled in and adjusted to her schedule and her needs. Just on her first day at home we had several bumps in the road as we had to adjust our home for her medical equipment, meet with nurses to fill out paperwork hours after being at home,  and replace her feeding tube that she had pulled out while at her first Pediatrician's appointment.  Tim and I know this is just the beginning of our journey and there will be many obstacles ahead but only can continue to stay positive, and pray for God to give us strength to carry us through each day. 
Thank you to everyone who have asked, visited or sent us love for Hayden since her arrival. We are so grateful for all of your continuous prayers, love and support and are truly blessed to finally have our precious little girl home sweet home.



1 comment:

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