But God demonstrated his own love for us in this; while we were still sinners, Christ died for us. -Romans 5:8
Amazing does not even begin to describe the progress Hayden has had over the past two days. I think everyone here has finally realized that she is special and unique and ultimately the one in control. Hayden no longer has a fever, her blot clot has resolved, new blood, urine and lung cultures are all coming back negative, glucose and hemoglobin levels are great, and she weighed in at 11 lbs 2 oz. We are so overwhelmed with joy of her progress and the power of prayer! Yesterday for the first time in 11 days, Tim and I both were able to finally hold Hayden in our arms again. She was intubated, on a ventilator, and sedated for 11 days in addition to the other two following surgery. Hayden was extubated on Wednesday and we all held our breath as we watched as she began to breath without the ventilator. She is still on high flow oxygen with a cannula in her nose but has taken huge strides and continues to defy the odds. She has overcome each and every obstacle thrown her way including a blood transfusion from low hemoglobin, finding another blood clot in her neck from her central line, and testing positive for a bacterial rod infection in her bronch culture.
Although it's Day 18 of being in the PICU and we have several more days and obstacles ahead of us, we still are celebrating this Easter Sunday as proud parents of our little fighter! We have been blessed with the most amazing Team of Physicians, Specialists, Therapists and Nurses during this journey. They have made such a negative experience that much more positive, made our days a little brighter, and have made us feel at home. Which, technically it has been our home these past few weeks.Today we have begun to discuss Hayden's progress and possibly moving to another floor out of the Intensive Care Unit and into Progressive Care. A week ago Tim and I never thought that would be possible but now we are one step closer to taking our sweet little angel home again. So this Easter as we celebrate the resurrection of our Lord Jesus Christ, we also are celebrating the amazing acts of kindness, compassion, and love that he has demonstrated to not only Hayden but to us all. His love endures forever and we are so blessed to witness this miracle.
A special thank you to all of those who donate to Levine Children's hospital as all the kids in the PICU today were brought these Easter baskets just to help brighten their day. Even in the hospital, the Easter Bunny came to visit. Happy Easter!
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