God gives grace (favor and blessing) to the humble.
God gives grace (favor and blessing) to the humble.
-1 Peter 5:5
Last Wednesday was a tough day to say the least. Not only did Hayden get three shots at her two month checkup but she also went to visit her Pediatric Surgeon. So to say it was a long exhausting day is an understatement. Most babies tend to cry and get fussy at night and into the evening hours or when they are tired, hungry, or need to be changed. Hayden is not "most babies." She tends to cry in pain at all hours, sometimes every hour and a half and it is very difficult at times to figure out why. Not only is she not getting any sleep at 10 weeks but we aren't either. It seems like sleep is so far in the distant future and it is heartbreaking to see your child in pain and not able to figure out how to ease her pain, and make it all better.
Not only have we consulted numerous Specialists but we recently consulted her Gastrointestinal Doctor to figure out the problem. We have switched her supplemented formula, switched mom to a dairy-free and soy-free diet (which by the way is absolutely miserable), increased her feeds, and increased her antibiotics and medicines. Now we are just trying to figure out the process of elimination and take it day by day.
Last week we also took Hayden to see her Pediatric Surgeon and after consulting with him and her Gastrointestinal Doctor they both recommended scheduling Hayden for surgery to insert a Gastrostomy Tube or G-Tube. Right now Hayden has an NG tube and is fed on a pump over the course of an hour every three hours. She is constantly pulling her NG tube out during feeds, coughing, choking, and it seems to always irritate her throat (and Mom and Dad are both tired of putting it back in). With the G-tube surgery a tube would be inserted directly through her abdomen into her stomach. Although she will have to be readmitted to the hospital,we are hoping this will help her receive proper nutrition and ease her pain.
Tim and I have gone back and forth in our decision regarding Hayden's surgery as she will be put under anesthesia and admitted back to Levine Children's Hospital for at least two days. She will be monitored one day prior to the surgery and at least one day following depending on her stats and how she does coming off anesthesia. Most of this time will be spent learning how to care for Hayden with cleaning the area so that it does not get infected or clogged and learning how to insert the tube if it falls out of place. We are still waiting for her abdominal and pelvic ultrasound and to hear if she has been cleared by her Cardiologist for surgery, but have officially scheduled her surgery for March 30th. At this same time we plan on having her omphalocele removed as well.
We truly hope this will make a difference and continue to ask for prayers and guidance for our daughter. I believe it takes faith to get through anything in life especially the low days when you think I am never going to get through this. If it were not for our faith and the love and support we have received, Tim and I would not be able to get through this last week or these past few months. God does not help those who help themselves but rather helps those who cannot help themselves. He helps the helpless, those who believe, and those who are dependent upon him and his word. All we can do now is believe that he will help our precious daughter and pray that Tim and I are making the right decision for Hayden.
Not only have we consulted numerous Specialists but we recently consulted her Gastrointestinal Doctor to figure out the problem. We have switched her supplemented formula, switched mom to a dairy-free and soy-free diet (which by the way is absolutely miserable), increased her feeds, and increased her antibiotics and medicines. Now we are just trying to figure out the process of elimination and take it day by day.
Tim and I have gone back and forth in our decision regarding Hayden's surgery as she will be put under anesthesia and admitted back to Levine Children's Hospital for at least two days. She will be monitored one day prior to the surgery and at least one day following depending on her stats and how she does coming off anesthesia. Most of this time will be spent learning how to care for Hayden with cleaning the area so that it does not get infected or clogged and learning how to insert the tube if it falls out of place. We are still waiting for her abdominal and pelvic ultrasound and to hear if she has been cleared by her Cardiologist for surgery, but have officially scheduled her surgery for March 30th. At this same time we plan on having her omphalocele removed as well. We truly hope this will make a difference and continue to ask for prayers and guidance for our daughter. I believe it takes faith to get through anything in life especially the low days when you think I am never going to get through this. If it were not for our faith and the love and support we have received, Tim and I would not be able to get through this last week or these past few months. God does not help those who help themselves but rather helps those who cannot help themselves. He helps the helpless, those who believe, and those who are dependent upon him and his word. All we can do now is believe that he will help our precious daughter and pray that Tim and I are making the right decision for Hayden.
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